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X-WR-CALNAME:Sturge Weber UK
X-ORIGINAL-URL:https://sturgeweber.org.uk
X-WR-CALDESC:Events for Sturge Weber UK
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251126
DTEND;VALUE=DATE:20251127
DTSTAMP:20260726T133254
CREATED:20250108T231522Z
LAST-MODIFIED:20250108T231522Z
UID:10000023-1764115200-1764201599@sturgeweber.org.uk
SUMMARY:Grant Application Panel Meeting - Q4
DESCRIPTION:If you have applied for a Make a Difference Grant in Q4\, the Grant Review Panel will meet today and review your application
URL:https://sturgeweber.org.uk/event/grant-application-panel-meeting-q4/
CATEGORIES:Make a Difference Grant Applications
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251105T120000
DTEND;TZID=Europe/London:20251105T133000
DTSTAMP:20260726T133254
CREATED:20241106T111952Z
LAST-MODIFIED:20241106T111952Z
UID:10000008-1762344000-1762349400@sturgeweber.org.uk
SUMMARY:Trustees Meeting
DESCRIPTION:Quarterly Trustees Meeting – please send any points you would like discussed to support@sturgeweber.org.uk
URL:https://sturgeweber.org.uk/event/trustees-meeting-5/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251019T110000
DTEND;TZID=Europe/London:20251019T120000
DTSTAMP:20260726T133254
CREATED:20241106T112639Z
LAST-MODIFIED:20241106T112639Z
UID:10000012-1760871600-1760875200@sturgeweber.org.uk
SUMMARY:Cuppa and Catch Up
DESCRIPTION:An opportunity to have a catch up with like minded people and discuss anything that you want about Sturge Weber\, your joys and frustrations.
URL:https://sturgeweber.org.uk/event/cuppa-and-catch-up-4/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251012
DTEND;VALUE=DATE:20251013
DTSTAMP:20260726T133254
CREATED:20250108T231018Z
LAST-MODIFIED:20250108T231018Z
UID:10000019-1760227200-1760313599@sturgeweber.org.uk
SUMMARY:Deadline for Make a Difference Grant Application - Q4
DESCRIPTION:If you are applying for a Make a Difference Grant\, then your application needs to be in by the end of this day. The panel will review your application on 26th November 2025 \nClick here to apply for a grant
URL:https://sturgeweber.org.uk/event/deadline-for-make-a-difference-grant-application-q4/
CATEGORIES:Make a Difference Grant Applications
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250924
DTEND;VALUE=DATE:20250925
DTSTAMP:20260726T133254
CREATED:20250108T231445Z
LAST-MODIFIED:20250108T231445Z
UID:10000022-1758672000-1758758399@sturgeweber.org.uk
SUMMARY:Grant Application Panel Meeting - Q3
DESCRIPTION:If you have applied for a Make a Difference Grant in Q3\, the Grant Review Panel will meet today and review your application
URL:https://sturgeweber.org.uk/event/grant-application-panel-meeting-q3/
CATEGORIES:Make a Difference Grant Applications
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250901
DTEND;VALUE=DATE:20250902
DTSTAMP:20260726T133254
CREATED:20250729T203238Z
LAST-MODIFIED:20250729T204531Z
UID:10000024-1756684800-1756771199@sturgeweber.org.uk
SUMMARY:Mike Grimes fundraiser for Sturge Weber UK
DESCRIPTION:Join us on an inspiring journey as we embark on the Hadrian’s Wall Veterans’ Trek\, where a team of dedicated veterans will walk from Newcastle to Carlisle across the historic Hadrian’s Wall. Accompanying Mike\, will be Terry Williamson and Gaz Byrne\, all of whom served together in A (Champion) Coy 1st Battalion The King’s Regiment in the 90s. This trek\, taking place on September 1\, 2025\, aims to raise vital funds for Sturge Weber UK\, an organization committed to promoting research and sharing knowledge about Sturge Weber Syndrome. \nLink to Mike’s Just Giving Page – Click here
URL:https://sturgeweber.org.uk/event/mike-grimes-fundraiser-for-sturge-weber-uk/
CATEGORIES:Fundraising Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250813T103000
DTEND;TZID=Europe/London:20250813T120000
DTSTAMP:20260726T133254
CREATED:20250730T105707Z
LAST-MODIFIED:20250730T110808Z
UID:10000025-1755081000-1755086400@sturgeweber.org.uk
SUMMARY:Trustees meeting about 2026 Family Weekend
DESCRIPTION:Sturge Weber Family Weekend Trustees Meeting – please send any points you would like discussed to support@sturgeweber.org.uk
URL:https://sturgeweber.org.uk/event/trustees-meeting-about-2026-family-week/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250810
DTEND;VALUE=DATE:20250811
DTSTAMP:20260726T133254
CREATED:20250108T230822Z
LAST-MODIFIED:20250108T230920Z
UID:10000017-1754784000-1754870399@sturgeweber.org.uk
SUMMARY:Deadline for Make a Difference Grant Application - Q3
DESCRIPTION:If you are applying for a Make a Difference Grant\, then your application needs to be in by the end of this day. The panel will review your application on 24th September 2025 \nClick here to apply for a grant
URL:https://sturgeweber.org.uk/event/deadline-for-make-a-difference-grant-application-q3/
CATEGORIES:Make a Difference Grant Applications
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250730T100000
DTEND;TZID=Europe/London:20250730T120000
DTSTAMP:20260726T133254
CREATED:20241106T111931Z
LAST-MODIFIED:20250730T105513Z
UID:10000007-1753869600-1753876800@sturgeweber.org.uk
SUMMARY:Trustees Meeting
DESCRIPTION:Quarterly Trustees Meeting – please send any points you would like discussed to support@sturgeweber.org.uk
URL:https://sturgeweber.org.uk/event/trustees-meeting-4/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250720T110000
DTEND;TZID=Europe/London:20250720T120000
DTSTAMP:20260726T133254
CREATED:20241106T112606Z
LAST-MODIFIED:20241106T112606Z
UID:10000011-1753009200-1753012800@sturgeweber.org.uk
SUMMARY:Cuppa and Catch Up
DESCRIPTION:An opportunity to have a catch up with like minded people and discuss anything that you want about Sturge Weber\, your joys and frustrations.
URL:https://sturgeweber.org.uk/event/cuppa-and-catch-up-3/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250702
DTEND;VALUE=DATE:20250703
DTSTAMP:20260726T133254
CREATED:20250108T231358Z
LAST-MODIFIED:20250108T231358Z
UID:10000021-1751414400-1751500799@sturgeweber.org.uk
SUMMARY:Grant Application Panel Meeting - Q2
DESCRIPTION:If you have applied for a Make a Difference Grant in Q2\, the Grant Review Panel will meet today and review your application
URL:https://sturgeweber.org.uk/event/grant-application-panel-meeting-q2/
CATEGORIES:Make a Difference Grant Applications
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250518
DTEND;VALUE=DATE:20250519
DTSTAMP:20260726T133254
CREATED:20250108T230614Z
LAST-MODIFIED:20250108T230901Z
UID:10000018-1747526400-1747612799@sturgeweber.org.uk
SUMMARY:Deadline for Make a Difference Grant Application - Q2
DESCRIPTION:If you are applying for a Make a Difference Grant\, then your application needs to be in by the end of this day. The panel will review your application on 22nd July 2025 \nClick here to apply for a grant
URL:https://sturgeweber.org.uk/event/deadline-for-make-a-difference-grant-application-q2/
CATEGORIES:Make a Difference Grant Applications
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250507T120000
DTEND;TZID=Europe/London:20250507T133000
DTSTAMP:20260726T133254
CREATED:20241106T111855Z
LAST-MODIFIED:20241106T111855Z
UID:10000006-1746619200-1746624600@sturgeweber.org.uk
SUMMARY:Trustees Meeting
DESCRIPTION:Quarterly Trustees Meeting – please send any points you would like discussed to support@sturgeweber.org.uk
URL:https://sturgeweber.org.uk/event/trustees-meeting-3/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250502T130000
DTEND;TZID=Europe/London:20250505T140000
DTSTAMP:20260726T133254
CREATED:20241106T114823Z
LAST-MODIFIED:20241106T115223Z
UID:10000013-1746190800-1746453600@sturgeweber.org.uk
SUMMARY:Family Weekend 2025
DESCRIPTION:Family Weekend 2025 is booked ! Lots of new exciting things for us to experience ! A swimming pool twice the size of Coventry ! Hot tub\, sauna and steam room! Hairdresser in the hotel and large gym with HIIT area ! Huge shopping centre across the road with the best M&S\, Primark\, H&M\, River Island\, Next\, Flannels\, Sports Direct\, JD and much more ! Oh and the M&S food court and shopping centre food court is something else ! Less interconnecting rooms but Double Double rooms ! Life’s a compromise and we are hoping this is a small one for much more of an experience for our Family Weekend 2025 is okay with you all! Hope to see you there ! More polls on speakers and more to follow. We just ask our adults who join us embrace the talks this year which is what the Family Weekend is for
URL:https://sturgeweber.org.uk/event/family-weekend-2025/
LOCATION:The Hilton Hotel in Leicester\, 21 Junction Approach\,\, Leicester\, LE19 1WQ\, United Kingdom
CATEGORIES:Family Weekend
ORGANIZER;CN="The Trustess":MAILTO:support@sturgeweber.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250423
DTEND;VALUE=DATE:20250424
DTSTAMP:20260726T133254
CREATED:20250108T231234Z
LAST-MODIFIED:20250108T231234Z
UID:10000020-1745366400-1745452799@sturgeweber.org.uk
SUMMARY:Grant Application Panel Meeting - Q1
DESCRIPTION:If you have applied for a Make a Difference Grant in Q1\, the Grant Review Panel will meet today and review your application
URL:https://sturgeweber.org.uk/event/grant-application-panel-meeting-q1/
CATEGORIES:Make a Difference Grant Applications
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250420T110000
DTEND;TZID=Europe/London:20250420T120000
DTSTAMP:20260726T133254
CREATED:20241106T112544Z
LAST-MODIFIED:20241106T112544Z
UID:10000010-1745146800-1745150400@sturgeweber.org.uk
SUMMARY:Cuppa and Catch Up
DESCRIPTION:An opportunity to have a catch up with like minded people and discuss anything that you want about Sturge Weber\, your joys and frustrations.
URL:https://sturgeweber.org.uk/event/cuppa-and-catch-up-2/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250401
DTEND;VALUE=DATE:20250501
DTSTAMP:20260726T133254
CREATED:20250108T213520Z
LAST-MODIFIED:20250108T213520Z
UID:10000015-1743465600-1746057599@sturgeweber.org.uk
SUMMARY:ACTIVE in APRIL 2025
DESCRIPTION:We are challenging you\, your friends and family to keep ACTIVE in APRIL by walking\, jogging\, running\, skating\, cycling or swimming throughout the month the miles of your choice. The challenge is set for all ages and abilities\, wheelchair users are welcome to join in too. \nVisit our Active in April 2025 page
URL:https://sturgeweber.org.uk/event/active-in-april-2025/
CATEGORIES:Fundraising Event
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250309
DTEND;VALUE=DATE:20250310
DTSTAMP:20260726T133254
CREATED:20250108T230530Z
LAST-MODIFIED:20250108T230730Z
UID:10000016-1741478400-1741564799@sturgeweber.org.uk
SUMMARY:Deadline for Make a Difference Grant Application - Q1
DESCRIPTION:If you are applying for a Make a Difference Grant\, then your application needs to be in by the end of this day. The panel will review your application on 23rd April 2025 \nClick here to apply for a grant
URL:https://sturgeweber.org.uk/event/deadline-for-make-a-difference-grant-application-q1/
CATEGORIES:Make a Difference Grant Applications
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250223T080000
DTEND;TZID=Europe/London:20250223T170000
DTSTAMP:20260726T133254
CREATED:20241028T151510Z
LAST-MODIFIED:20241028T151510Z
UID:10000004-1740297600-1740330000@sturgeweber.org.uk
SUMMARY:Melissa Brandon - Leicestershire Half Marathon
DESCRIPTION:When our son\, Nathaniel\, was born in 2021\, we had never heard of Sturge-Weber Syndrome. This all changed when he was 3 months old. Out of nowhere\, he suffered a stroke-like event and started having uncontrollable seizures. That’s when SWS took over our lives. \nThis is why I will be raising money for Sturge Weber UK when I run my first half marathon in February. \nSee my Just Giving page https://www.justgiving.com/page/melissa-brandon-1729457972321 \n 
URL:https://sturgeweber.org.uk/event/melissa-brandon-leicestershire-half-marathon/
CATEGORIES:Fundraising Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250130T080000
DTEND;TZID=Europe/London:20250130T170000
DTSTAMP:20260726T133254
CREATED:20241107T092000Z
LAST-MODIFIED:20241107T092108Z
UID:10000014-1738224000-1738256400@sturgeweber.org.uk
SUMMARY:Trustees GOSH Away Day
DESCRIPTION:Every year for the last few years years the team at Great Ormond St Hospital have invited the Trustees up to London to have a meeting and chat with experts in the field about all things Sturge Weber. If you have any questions you would like us to raise\, please send them to support@sturgeweber.org.uk
URL:https://sturgeweber.org.uk/event/trustees-gosh-away-day/
LOCATION:Great Ormond Street Hospital\, United Kingdom
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250119T110000
DTEND;TZID=Europe/London:20250119T120000
DTSTAMP:20260726T133254
CREATED:20241106T112515Z
LAST-MODIFIED:20241106T112515Z
UID:10000009-1737284400-1737288000@sturgeweber.org.uk
SUMMARY:Cuppa and Catch Up
DESCRIPTION:An opportunity to have a catch up with like minded people and discuss anything that you want about Sturge Weber\, your joys and frustrations.
URL:https://sturgeweber.org.uk/event/cuppa-and-catch-up/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250111T093000
DTEND;TZID=Europe/London:20250111T170000
DTSTAMP:20260726T133254
CREATED:20241106T111804Z
LAST-MODIFIED:20241221T105043Z
UID:10000005-1736587800-1736614800@sturgeweber.org.uk
SUMMARY:Trustees Meeting
DESCRIPTION:Quarterly Trustees Meeting – please send any points you would like discussed to support@sturgeweber.org.uk
URL:https://sturgeweber.org.uk/event/trustees-meeting-2/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241108T183000
DTEND;TZID=Europe/London:20241108T193000
DTSTAMP:20260726T133254
CREATED:20241025T122047Z
LAST-MODIFIED:20241025T122058Z
UID:10000003-1731090600-1731094200@sturgeweber.org.uk
SUMMARY:Wine & Witter
DESCRIPTION:Mum’s & Wives – catch up online
URL:https://sturgeweber.org.uk/event/winre-witter/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241106T120000
DTEND;TZID=Europe/London:20241106T140000
DTSTAMP:20260726T133254
CREATED:20241022T200910Z
LAST-MODIFIED:20241022T201515Z
UID:10000002-1730894400-1730901600@sturgeweber.org.uk
SUMMARY:Trustees Meeting
DESCRIPTION:If you would like to raise anything for the Trustees to discuss\, please email it through to support@sturgeweber.org.uk.
URL:https://sturgeweber.org.uk/event/trustees-meeting/
CATEGORIES:Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241005
DTEND;VALUE=DATE:20241006
DTSTAMP:20260726T133254
CREATED:20241002T194245Z
LAST-MODIFIED:20241003T095958Z
UID:10000001-1728086400-1728172799@sturgeweber.org.uk
SUMMARY:Becky Blount - 3 Peaks Challenge
DESCRIPTION:I’ll be attempting to complete the Yorkshire 3 Peaks challenge on Saturday 5th October with 2 of my friends\, I intended to do the challenge in May but I got covid so my friends completed it without me\, one being Sarah Leake\, Mum of Alfie who has Sturge Weber. \nI’m a trustee of a new charity called Pectus Matters\, we advocate for people with chest wall malformations and are working towards policy and funding changes for NHS surgery. \nI’ll also be raising money for the Amelia Mae foundation\, they support children with neuroblastoma. \nWe hope this fundraiser will be an opportunity to build some positive networks with your charity which will benefit those we support and raise some much needed awareness for these rare conditions. \nLink to Becky’s Just Giving page
URL:https://sturgeweber.org.uk/event/becky-blount-3-peaks-challenge/
LOCATION:3 Peaks Challenge\, United Kingdom
END:VEVENT
END:VCALENDAR