Marie Cavalier was elected to the Chair position in July 2021 for a term of 3 years. Marie was previously the secretary of the Charity from October 2019 and stepped in as acting Chair when previous Chair stepped down in January 2021.
Marie is mum to Annie who has Sturge Weber Syndrome and mum to Joshua and Finley.
Carolyn Burns was elected to our secretary position in July 2021 for a term of 3 years. Carolyn has been a Trustee of the Charity since 2018.
Carolyn is mum to Tegan who has Sturge Weber Syndrome also mum to Caitlin, Callum and Yasmin.
Steve was appointed a Trustee in May 2023.
Steve is father to Callum, a 12 year old boy with bi-lateral Sturge Weber and Lily, Callum’s 15 year old sister.
Bio to follow
Danny is a Charity Champion, he’s 22 years old and lives on the Wirral in Merseyside with his family. He has Sturge Weber Syndrome and has been a volunteer for 2 years and wants to to help families going threw there journey.
Danny like his father Mike (Secretary & Trustee) is an Everton fan.
