I’m a journalism student and I have been creating a documentary film as part of my dissertation, working with Caity Downs and Paula Harman to tell Caity’s story and raise awareness of Sturge Weber syndrome. Hopefully this can make a positive impact! Some of the filming took place at the Sturge Weber UK Family Weekend, mainly focusing on Caity and her family but also on the weekend and the group as a whole.
Emily Mee
Emily is now a Producer for Sky News.
Caity and I have been happy to help Emily with her dissertation. Caity has found it a fun and positive experience, allowing her self confidence to grow. At times it has been emotional, talking about past times, looking at old photos and videos of all my children. However lots of lovely memories have been rekindled too!
The highlight was our meeting with Mr. Harkness, the surgeon who performed Caity’s neurosurgery nearly 16 years ago. Although now retired, he was happy to meet for coffee and to answer Caity’s questions. For several years Caity has wanted to say thank you to Mr. Harkness, and meet the man she could not remember. I never thought that this would have been possible, but thanks to Emily’s hard work she was able to make this happen.
Paula Harman
| Cookie | Duration | Description |
|---|---|---|
| cookielawinfo-checkbox-analytics | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics". |
| cookielawinfo-checkbox-functional | 11 months | The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional". |
| cookielawinfo-checkbox-necessary | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary". |
| cookielawinfo-checkbox-others | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other. |
| cookielawinfo-checkbox-performance | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance". |
| viewed_cookie_policy | 11 months | The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data. |