Membership

Membership of Sturge Weber UK

If you chose to become a member of Sturge Weber UK you will access to support for emotional, practical, and financial matters. Membership is free. 

Joining as a member is easy and just takes a minute of your time to complete the online registration form below.  If you are a parent or carer you will need to upload a copy of the diagnosis letter for the person diagnosed with Sturge Weber Syndrome. 

The data we hold will only ever be used with your permission for activities relating to running our charity, its website, fundraising activities, and services. Details of more information on how we look after your data.

Once registered as a member of our charity you will receive: 

  • Welcome letter via email
  • A quarterly newsletter
  • Other relevant communications
  • Fundraising packs
  • An invitation to attend the Family Weekend and other events.
  • Ability to vote at our Annual General Meetings
  • Apply for our financial grants.

Alternatively, we can send you a printed membership form if you e-mail us at support@sturgeweber.org.uk or write to: Sturge Weber UK, Milk Hall, Withens Lane, Barkisland, Halifax, HX4 0DY

Apply online now

Please fill out the form below to become a member.   If you are a family wanting to join, please complete a membership form for anyone over the age of 16.  Your membership helps us make a difference!

Personal Details
Preferred Method of Contact:



Membership Type

Realtionship to person with a diagnosis



Data Protection
Sturge Weber UK is committed to protecting your privacy and will use your data in accordance with GDPR. Please tick below if you are happy to receive updates.

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Gift Aid Declaration
Boost your donation by 25p for every £1 you donate! If you are a UK taxpayer, please tick the box below to join Gift Aid.



I confirm that the information I’ve provided is accurate and that I would like to become a member of Sturge Weber UK