I’ll be attempting to complete the Yorkshire 3 Peaks challenge on Saturday 5th October with 2 of my friends, I intended to do the challenge in May but I got covid so my friends completed it without me, one being Sarah Leake, Mum of Alfie who has Sturge Weber. I’m a trustee of a new charity […]
If you would like to raise anything for the Trustees to discuss, please email it through to support@sturgeweber.org.uk.
Mum's & Wives - catch up online
Quarterly Trustees Meeting - please send any points you would like discussed to support@sturgeweber.org.uk
An opportunity to have a catch up with like minded people and discuss anything that you want about Sturge Weber, your joys and frustrations.
Every year for the last few years years the team at Great Ormond St Hospital have invited the Trustees up to London to have a meeting and chat with experts in the field about all things Sturge Weber. If you have any questions you would like us to raise, please send them to support@sturgeweber.org.uk
When our son, Nathaniel, was born in 2021, we had never heard of Sturge-Weber Syndrome. This all changed when he was 3 months old. Out of nowhere, he suffered a stroke-like event and started having uncontrollable seizures. That's when SWS took over our lives. This is why I will be raising money for Sturge Weber […]
If you are applying for a Make a Difference Grant, then your application needs to be in by the end of this day. The panel will review your application on 23rd April 2025 Click here to apply for a grant
We are challenging you, your friends and family to keep ACTIVE in APRIL by walking, jogging, running, skating, cycling or swimming throughout the month the miles of your choice. The challenge is set for all ages and abilities, wheelchair users are welcome to join in too. Visit our Active in April 2025 page
An opportunity to have a catch up with like minded people and discuss anything that you want about Sturge Weber, your joys and frustrations.
If you have applied for a Make a Difference Grant in Q1, the Grant Review Panel will meet today and review your application
Family Weekend 2025 is booked ! Lots of new exciting things for us to experience ! A swimming pool twice the size of Coventry ! Hot tub, sauna and steam room! Hairdresser in the hotel and large gym with HIIT area ! Huge shopping centre across the road with the best M&S, Primark, H&M, River […]
Quarterly Trustees Meeting - please send any points you would like discussed to support@sturgeweber.org.uk
If you are applying for a Make a Difference Grant, then your application needs to be in by the end of this day. The panel will review your application on 22nd July 2025 Click here to apply for a grant
If you have applied for a Make a Difference Grant in Q2, the Grant Review Panel will meet today and review your application
An opportunity to have a catch up with like minded people and discuss anything that you want about Sturge Weber, your joys and frustrations.
Quarterly Trustees Meeting - please send any points you would like discussed to support@sturgeweber.org.uk
If you are applying for a Make a Difference Grant, then your application needs to be in by the end of this day. The panel will review your application on 24th September 2025 Click here to apply for a grant
Sturge Weber Family Weekend Trustees Meeting - please send any points you would like discussed to support@sturgeweber.org.uk
Join us on an inspiring journey as we embark on the Hadrian’s Wall Veterans’ Trek, where a team of dedicated veterans will walk from Newcastle to Carlisle across the historic Hadrian’s Wall. Accompanying Mike, will be Terry Williamson and Gaz Byrne, all of whom served together in A (Champion) Coy 1st Battalion The King’s Regiment […]
If you have applied for a Make a Difference Grant in Q3, the Grant Review Panel will meet today and review your application
If you are applying for a Make a Difference Grant, then your application needs to be in by the end of this day. The panel will review your application on 26th November 2025 Click here to apply for a grant
An opportunity to have a catch up with like minded people and discuss anything that you want about Sturge Weber, your joys and frustrations.
Quarterly Trustees Meeting - please send any points you would like discussed to support@sturgeweber.org.uk
If you have applied for a Make a Difference Grant in Q4, the Grant Review Panel will meet today and review your application
