As the year draws to a close, we are excited to update you on the incredible work and progress made by Sturge Weber UK over the past few months. From new campaigns to exciting grants and initiatives, here’s what we’ve been working on:
Launching the Stronger Together Campaign
During the end 2024 the trustees have been working on launching our Stronger Together Campaign, aimed at raising awareness and fostering a sense of unity within the Sturge Weber UK community. So what is the Campaign?
The Stronger Together Campaign is all about uniting the Sturge Weber UK (SWUK) community to make a lasting impact. By raising at least £200 per year, every member can help us fund vital research, provide essential support to families, help fund the family weekend and minimise cost to attendees, and raise awareness of Sturge-Weber syndrome.
With everyone’s contribution—whether big or small—we can achieve remarkable things. Together, we are Stronger Together.
How You Can Help Raise £200
Here are six simple and effective ways to hit your £200 goal and support our mission:
1. Shop and Give for Free
2. Donate Instead of Sending Cards
3. Monthly Giving
Make a regular, meaningful contribution to SWUK by setting up a monthly donation. It’s an easy way to spread your giving throughout the year.
Example:
4. Facebook Fundraising
Use your social media to make a difference!
5. Donate via PayPal
Make a quick and secure donation to Sturge Weber UK through PayPal. It’s fast, easy, and impactful.
6. Fundraise Your Way
Get creative and organize your own fundraiser! There are countless ways to get involved:
Need ideas or resources? Download our fundraising pack to get started.
Get Your Fundraising Pack
7. Active in April
Join our annual Active in April challenge and get moving for a great cause!
How to Participate:
Every step, mile, or movement you make will help us get closer to our goals.
8. Match Funding
Double your fundraising impact! Many employers offer match funding programs to support their employees’ charitable efforts.
How It Works:
Not sure how to ask your employer? Contact us, and we can provide a letter or information to help.
9. Engage Corporate Sponsors
Encourage local businesses to support Sturge Weber UK as part of their Corporate Social Responsibility (CSR) efforts.
Ways to Get Businesses Involved:
Ask businesses to sponsor your fundraising event or activity.
Invite them to join SWUK as a corporate partner or donate directly.
Highlight their support on your social media or event materials.
Are you a business owner? Contact us to explore sponsorship opportunities with SWUK!
Learn About Corporate Partnerships
Your Impact: What £200 Can Do
Every £200 you raise helps us:
With everyone raising £200, we could reach an incredible £50,000 in one year. Imagine the difference we could make together!
How to Get Started
Join the Stronger Together Campaign Now!
Need Help?
We’re here to support you every step of the way. Get in touch for:
New Members – Only Section on Our Website
We’re thrilled to announce the launch of a dedicated Members Only Section on our website. This exclusive area provides access to additional resources, updates, and support tailored to your needs.
Key highlights include:
Log in today to explore these exciting features!
Family Weekend 2025
Planning for our 2025 Family Weekend in Leicester is underway, and booking forms are now live on the members-only section of our website. We ask that booking forms be completed and returned to us by 14th February 2025. If you are having problems accessing the booking form please contact support@sturgeweber.org.uk
Aldi Port Wine Doll Campaign
Sturge Weber UK were pleased to see Aldi’s range of inclusive dolls launched in October. The charity had an online campaign to ask the public to send as many dolls to us as possible, and we can confirm that we still have 40 dolls which we are happy to send on to members. Thank you to all who supported this camp.
Also thank you to Alice Hourigan who modelled for Aldi and has raised much needed awareness of Sturge Weber Syndrome.
Back to School and College
As September rolled in, many of our members and their siblings returned to school and college. We wish you all a fantastic school year ahead and remind you that we’re here to support you every step of the way.
Celebrating Success
We’re delighted to share that Sophie Impey has successfully gained employment! Congratulations, Sophie—your achievement is an inspiration to us all.
Funding Updates
Make a Difference Grant Scheme
The Make a Difference Grant Scheme is now open again!
Grant Categories:
Our Grant Program covers a variety of categories, including but not limited to:
Grant Amounts:
Grants are available in different amounts, ranging up to to £1000. The grant amount awarded will be determined based on the scope and impact of the proposed project.
Eligibility Criteria:
To be eligible for the Make a Difference Grant Program, members must meet the following criteria:
Application Process:
Grant Review Committee Meeting Dates:
Reporting Requirements:
Grant recipients must submit progress reports and a final report outlining the grant’s impact. This information will be used to showcase the positive contributions of our members and inspire others.
Cuppa and Catchups 2025
Looking ahead to 2025, we’re excited to continue our Cuppa and Catchups sessions. These virtual gatherings are a great way to connect with fellow members and share experiences in a relaxed setting. Another new feature of the members only part of the website is access to the Charity Calendar where you can see all upcoming Cuppa and Catchups !
Charity Shop Sale
Don’t miss our Charity Shop Sale! It’s a fantastic opportunity to find great bargains while supporting the vital work of Sturge Weber UK. Every purchase makes a difference.
Thank You to Our Fundraisers
We extend our heartfelt thanks to the incredible individuals who have raised money for Sturge Weber UK:
Your efforts and dedication make a significant difference to our charity. Thank you!
Exciting Opportunity: Join Us as a Fundraising Trustee.
We are thrilled to announce an exciting role opening up at Sturge Weber UK. We are looking for a Fundraising Trustee to join our team and help drive forward our mission. If you have a passion for fundraising and want to make a real difference, this could be the role for you!
For more information about the role and how to apply, please contact us at support@sturgeweber.org.uk
